Global Advocacy Manager, Rare Disease

In this vital role you will play an important role in advancing global advocacy efforts in rare disease. Working closely with the Global Advocacy Director and in-country and regional advocacy leads, you will ensure strong collaboration with patient advocacy groups, help coordinate patient engagement activities and support strategic initiatives. The role involves direct interaction with internal and external partners and offers the opportunity to contribute meaningfully to patient-centered work across geographies. This will be a remote role based in the US, with domestic and international travel to support key advocacy events will report to the Global Advocacy Director, Rare Disease. You will play a key role in coordinating global advocacy engagement plans and partnerships with patient advocacy groups and communities, ensuring timely execution, clear accountability and strategic alignment. You will assist with planning and delivering global events like Mission Week, Stakeholder Summit, including identifying and preparing patient participants and aligning deliverables with advocacy goals. You will help manage a global pool of patients by tracking participation, ensuring diverse representation and coordinating logistics for events and campaigns. You will support the end-to-end contracting process for patients by liaising with internal stakeholders, tracking deliverables and maintaining documentation. You will collaborate with cross-functional teams and external agencies to support patient engagement activities, including meeting prep, content review and campaign execution. You will maintain centralized documentation of patient and advocacy interactions to support continuity, knowledge-sharing and alignment with broader initiatives. You will partner with global and in-country compliance and legal teams on program activation to ensure proactive risk assessment, clear documentation and timely approvals.