Source Job

US

  • Develop and execute the U.S. IMD patient advocacy strategy, aligning with organizational priorities.
  • Build trusted partnerships with patient advocacy organizations, community leaders, caregivers, and patients.
  • Lead cross-functional collaboration to translate community insights into actionable strategies.

Patient Advocacy Strategic Planning Stakeholder Management Communication Healthcare Compliance

14 jobs similar to Director, Patient Advocacy, Inherited Metabolic Disorders (IMD)

Jobs ranked by similarity.

US

  • Support the development and execution of patient engagement and advocacy strategies for ivonescimab across oncology indications.
  • Collaborate cross-functionally to integrate patient insights into clinical development, Medical Affairs, and commercialization planning.
  • Engage with patient advocacy organizations and external stakeholders to address disease burden and educational gaps.

Summit Therapeutics Inc. is a biopharmaceutical oncology company focused on improving quality of life and addressing serious unmet medical needs. The company is building a global team of world-class professionals driven by core values of integrity, collaboration, and commitment to people, with multiple Phase 3 clinical studies underway.

US

  • Develop and execute U.S. stakeholder engagement strategies for advocacy and professional societies.
  • Build relationships with KOLs, patient advocacy groups, and oncology experts.
  • Lead regional oncology conferences and advocacy events for launch readiness.

Iovance Biotherapeutics is the global leader in developing and delivering tumor infiltrating lymphocyte (TIL) cell therapies for solid tumors. The company operates as an end-to-end cell therapy organization with U.S.-based manufacturing, serving cancer patients worldwide.

Western US Unlimited PTO

  • Develop and execute engagement strategies for national, regional, and emerging thought leaders in rare neurological diseases.
  • Lead advisory boards, physician speaker programs, and congress engagement while capturing field insights to shape brand strategy.
  • Collaborate with Commercial, Marketing, and Medical Affairs to translate customer insights into actionable recommendations and support launch readiness.

This partner company is a pharmaceutical and biotechnology organization focused on rare neurological diseases. Their culture emphasizes cross-functional collaboration and strategic commercial leadership.

US

  • Lead and develop a field sales team focused on post-bariatric hypoglycemia (PBH).
  • Own regional strategy and execution, translating brand priorities into territory plans.
  • Build relationships with health systems and metabolic care teams to drive patient support.

Amylyx is a clinical-stage biopharmaceutical company focused on developing treatments for diseases with high unmet needs, including post-bariatric hypoglycemia, Wolfram syndrome, and ALS. The company has an experienced team and a culture of caring, driven by core values of audacity, curiosity, and accountability.

US Unlimited PTO

  • Develop and maintain senior payer relationships across a ten-state Northeast territory.
  • Lead account strategy for 16 accounts including Highmark, Independence, Point32Health, and UPMC.
  • Coordinate cross-functionally to resolve access barriers and support rare disease launches.

BridgeBio is a biopharmaceutical company using a 'moneyball for biotech' model to advance early-stage research and develop rare disease treatments. It values curiosity, experimentation, and boundary-pushing, fostering a collaborative culture with respected industry minds.

US Unlimited PTO

  • Lead managed market access strategy and execution for regional payers, Medicaid, and IDNs across the Central U.S.
  • Own HCSC and CareSource corporate relationships and coordinate regional account execution.
  • Partner with cross-functional teams to secure coverage, resolve access barriers, and drive pull-through.

BridgeBio is a biopharmaceutical company using a pooled research model with small expert teams to advance rare disease medicines. The culture prizes curiosity, experimentation, and empowered problem-solving.

US

  • Lead REGENXBIO’s national commercial field strategy for rare disease gene therapies.
  • Oversee field launch readiness, sales force effectiveness, and patient services.
  • Coach and develop a high-performing field organization to achieve growth targets.

REGENXBIO is a biotechnology company pioneering gene therapies for rare and retinal diseases. It is a growing, collaborative team working to bring transformative treatments to patients in need.

$177,000–$338,800/yr
US

  • Lead global medical affairs strategy and execution for an investigational OX2R treatment across the product lifecycle.
  • Drive launch readiness, scientific engagement, and evidence generation in collaboration with cross-functional teams.
  • Build trusted relationships with key opinion leaders, patient advocacy groups, and global stakeholders.

The company is a biopharmaceutical organization developing an innovative investigational treatment targeting orexin receptor 2 for sleep-wake disorders. It fosters a collaborative, inclusive environment focused on scientific innovation and meaningful patient impact.

US

  • Build and strengthen relationships with established and emerging Medical Experts in neurology to generate actionable insights.
  • Lead compliant engagement activities, including advisory boards, congresses, and peer-to-peer education programs.
  • Collaborate across Marketing, Medical Affairs, HCP Education, and Congress teams to translate commercial strategy into field execution.

Praxis Precision Medicines is a clinical-stage biopharmaceutical company translating genetic insights into therapies for central nervous system disorders. They offer a world-class benefits package and foster a culture of trust, ownership, curiosity, and results.

$175,000–$220,000/yr
US

  • Serve as the primary point of contact for patients and caregivers, providing education on disease state, therapy options, and access pathways.
  • Coordinate access and reimbursement, including affordability enrollment, benefit verifications, prior authorization, and site-of-care logistics.
  • Collaborate with internal teams and external stakeholders to remove non-clinical barriers and enhance the patient experience.

Scholar Rock is a biopharmaceutical company developing muscle-targeted therapies for spinal muscular atrophy and other rare neuromuscular diseases. It leverages a proprietary platform to create novel monoclonal antibodies, with a strong commitment to innovation and patient support.

US Unlimited PTO

  • Serve as regional reimbursement expert, educating providers on access pathways and addressing barriers in commercial and government payer environments.
  • Coordinate family access and support, ensuring compliant education and seamless coordination among providers, pharmacies, and internal teams.
  • Act as a senior cross-functional partner, generating field insights and contributing to access strategy while mentoring colleagues.

BridgeBio pioneered a 'moneyball for biotech' approach, pooling early-stage research to reduce risk and unleash innovation for rare diseases. They value curiosity and experimentation, with a culture that defies convention and empowers problem-solvers.

US 3w PTO

  • Advise chapters and strengthen relationships between chapters and Make-A-Wish America to drive operational efficiency, financial growth, and overall success.
  • Collaborate with chapter CEOs, Boards, and the National Office to execute enterprise strategy and deliver resources that help chapters meet annual goals.
  • Conduct comprehensive assessments, financial analysis, and performance monitoring to identify improvements and implement best practices.

Make-A-Wish America is the world's largest wish-granting organization, uniting communities to grant life-changing wishes to children with critical illnesses. The organization fosters a warm, inclusive culture and employs a dedicated team of colleagues, volunteers, and wish families across the U.S.

US

  • Lead trusted client partnerships and integrated marketing initiatives in a healthcare communications environment.
  • Serve as a senior client partner, shaping brand priorities and strategic marketing plans.
  • Oversee account health, budgets, resources, and cross-functional teams to deliver impactful programs.

They provide integrated marketing and communications solutions for healthcare clients, helping shape brand strategies and audience-focused programs. They foster a collaborative, inclusive workplace that values growth, professional development, and diverse perspectives.

US

  • Own and evolve the patient marketing strategy for ulixacaltamide, including segmentation, journey mapping, messaging, and channel strategy.
  • Translate patient and caregiver insights into strategic decisions, partnering with cross-functional teams to identify unmet needs and key moments.
  • Lead the development of patient-facing campaigns and materials, directing external agencies and defining success measures.

Praxis Precision Medicines is a clinical-stage biopharmaceutical company translating genetic insights into therapies for central nervous system disorders. The company fosters a culture of trust, ownership, curiosity, and results, with a collaborative and entrepreneurial team aiming to reshape the human condition.